It is the true teacher who leaves the class knowing they have learned the most.
Tucson, AZ
Joined September 2006
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Jeff is autocorrect from voice to text for death. I apologize but I don't feel too nice about Google at the moment
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I agree with you I was just change the words a bit as a person who grew up in the USA especially what we call Medical science here is neither medical nor science clinically. Who teaches doctors about pharmaceuticals? Or the idea that Jeff is a failure. Never understood that one
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And yet here we are after all these years and Italian and an American who have never met each other still friends still having conversations even on Twitter that have some depth of meaning. Interesting my friend hope you are well XO
It is only for the very seriously ill or knowing that's true the palliative care can stop or start as needed or merge into hospice service which is now considered the final months and weeks of living. The focus is on the patient's and quality of the life now not tomorrow or death
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Informally that everyone has a different idea of what it means although all interpretations could exist with the current exception in many organizations being patients can not have a fully terminal disease and they still be in treatment such as a breast cancer patient.
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Good response from Joe about my search for palliative care and what that meant to individuals. It's often confused with hospice or considered the same thing and it is been marginalized barely required for residents to do anywhere in the world. So a lot of confusion and complexity
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I am less sorry to have been in pain and sick than I am for putting up with idiots because we're taught to believe them.
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People are different and so are those meds. I never felt weird or inebriated from a benzo at all, but they used gabapentin and methocarbomal, opiods too. Yeah I fell down a lot. It happens when patients have low blood oxygen too.
Yes, that's why people are dying because long term benzos at high diagnosis are deadly to stop in some patients. I'm on one now but not daily and I stopped, not the "TEAM" (there was no team, just practicers who wanted to take credit for what took me a lifetime to do).
It took over 50 years for me and the vast majority of the awful stuff is in fact iatrogenic, left me without savings, and that's just my story, my family oh goodness gracious. *hugs*
In palliative care of the most modern kind, you could decide you didn't want to take it at all or ask for a different dosage. It's what brings comfort and quality to your life, not a doctor know it all telling you what's right for you.
Have you talked with a palliative care specialist at all? They are very hard to find and reach very few people at this time. Your condition and situation qualify. It's about your decisions, not the doctors on quality of life for YOU to decide,
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That's a very good point and there is actually some data going on and some work on that but not quite what you're talking about I think it definitely has a lot to do with where when and how you might have heard those terms used if at all. You must be a scientist ;-)
Yeah it's a pretty shitty time when you have to teach your own doctors medicine they don't believe you know a thing about because my God how can a patient possibly have been educated or more educated than them they must be using Google obsessionally so much it belongs in the DSM.
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That we embrace the binary model so much is disconcerting. My way is right your way is wrong. The opposite of hate is love and we don't look beyond. This is considered black and white thinking , often part of the so-called diagnostic measure of mental illness. Now that is funny.
I believe the #prescribedharm movement is going to get bigger, as the psychiatric and physical damage done by immunotherapies and unnecessary pain meds etc are measurable and consistent over decades. Maybe it will help someone. Forever with you, for finding quality of life. xo/m
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Am I proud of myself? I don't even know, it was such suffering without support - and even such demeaning, dehumanizing accusations all false. It's a different outcome but for ME alone I feel was right. I sleep, eat, and I feel autonomy and nobody's victim. Thank you for reading.
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Nearly 40 years of benzos, I was free but I was really sick. After two weeks of evaluation, refusing pain meds at this time, they decided a low dose non-daily benzo was the best tolerated and least destructive since I'd be at home monitored for falls. And so now here I am.
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