Received a letter from the NHS Neurologist I spoke to about my daughter in which he describes her as having ‘a label of ME/CFS’ and in the same para mentions the difficulty in separating ‘functional’ neurological symptoms from organic neuro damage. Nigel Speight was spot on.
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This is not to concern you in any way I was diagnosed with the US version CFS in 1985. It was not CFS it was not depression it was a rare blood disease. And now I'm dying from it and all of the cascading awful that came from it including psych meds for things I didn't have.
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My beloved colleagues set up a GoFundMe and saved me from homelessness from no medicine that was really the good medicine I needed and in the US it's not covered of course and very expensive. When I get some funds I shall pay it forward. Your daughter has a great advocate in you!
Mar 15, 2023 · 4:06 PM UTC
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