Received a letter from the NHS Neurologist I spoke to about my daughter in which he describes her as having ‘a label of ME/CFS’ and in the same para mentions the difficulty in separating ‘functional’ neurological symptoms from organic neuro damage. Nigel Speight was spot on.
28
56
5
301
Replying to @tenacious_mumma
This is not to concern you in any way I was diagnosed with the US version CFS in 1985. It was not CFS it was not depression it was a rare blood disease. And now I'm dying from it and all of the cascading awful that came from it including psych meds for things I didn't have.

Mar 15, 2023 · 3:04 AM UTC

1
12
Replying to @mholzschlag
So sorry to hear this 😞
2
2
I appreciate your compassion. I wish I had heard that once from anyone who screwed up along the way. I have never heard I'm sorry or we were wrong or any admission of Truth in 40 years and that to me is the worst of all. I got love and care elsewhere. You're a good mom.
2