This is a personal story involving the growing movement of human social and civil rights surrounding #medication and so-called "mental" health movement under #prescribedHarm - please know the result is not the goal for most but just for me as a complex palliative care patient.

How frustrating. I'm so sorry that happened to you.

I went through 17 years of misdiagnosis which ended up being Parkinson's. One doctor who specializes in movement disorders at Kaiser set my Tremor was like Parkinson's, but too fast. He prescribed clonazepam.

I Parkinson's doctor tells me the number one reason for a Parkinson's patients to go to the ER is because of falling. Apparently one of the side effects of clonazepam is falling. For the six months I took it I fell a lot.

Another doctor gave me a drug that turns into a narcotic in the bloodstream. I couldn't even walk down the short haul away from my bedroom to the bathroom without hitting the walls. I guess the reason why doctors called a practice it's because they're still practicing.

When I was finally diagnosed with Parkinson's, because of the many missed diagnoses diagnosis I didn't believe the doctor. I ended up getting a very expensive test five months later that confirmed the Parkinson's diagnosis.

Know that we're here for you, Tanny 💙 We have many resources for people with PD on our website: Parkinson.org/Resources

You have many good resources. I especially like this card to show a hospital if you have to stay overnight. The problem is, they want to give you carbidopa/levodopa on their time schedule. When I was last hospitalized I ended up taking my medication on my own. They didn't like me