There used to be a few there, but quit. Many providers are undertrained on benzodiazepines and don't want to deal with the realities patients face with cessation. The prescribers tend to disbelieve the patient experience, so it's tough to find many providers open to slow tapers.
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Tell me about it. I'm looking for safe tapering for 38 years of benzos. I was not anxious. doctors could not diagnose my medical illness which revealed itself later to be bone marrow aplasia. Doctor insists anxiety panic and seizures now are symptoms returning not withdrawals
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So instead of believing me she now wants me on gabapentin, hydroxyzine, and an SSRI all of which I've taken at some point in my life and will not do I am down to one prescription, the benzo. I'm a long- term Survivor of terminal illness who might actually die of benzo withdrawals
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Several years into medical illness I experienced a major depressive episode I had self-reported those feelings of depression no suicidal ideation no self harm those feelings began 10 days prior to menstruation when it started within minutes no symptoms. I was prescribed Sarafem.
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I was told this was the miracle cure for women with severe PMS. It was Fluoxetine of course package just for women like me. Within hours a strange feeling came over me within 6 months I was bleeding almost 30 days a month and no relief from depression at all in fact the opposite.
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I became actively suicidal and began acts of self harm. So what did they do raised my dosage to 40 mg from 20 I was in my thirties already and for one day had SSRI induced psychosis with disorientation disassociation and bizarre thoughts I was immediately dropped to 20 mg.
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So by now not only did I have what was called CFS for lack of a better way to describe my medical issues along with panic disorder severe anxiety and major depressive disorder with dysthymia along with photosensitive epilepsy and absence seizures. In 2013 my bone marrow failed.
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I also showed non-alcoholic cirrhosis of the liver decompensated with no other symptoms then heavy scarring from Nash. I was given chemotherapy and immunotherapy including interferon which cause psychiatric symptoms. Now I had a subclinical mood disorder. Prescribed Quetiapine.
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There had also been intermittent use of chlorpromazine for severe nausea which is a first gen anti-psychotic. This caused the already existing neutropenia to become so severe I was down to almost 500 increasing neupogen, bone marrow stem cell stimulant. Very painful side effects.
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So here I am alive 9 years past terminal diagnosis got off of every prescription but the benzo on my own. This one I've taken from 5 mg of clonazepam down to 1 mg per day. But how do I do that on my own if I can't access the prescription in the first place to taper slowly.
Aug 4, 2022 · 3:54 PM UTC
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