Wowwww. Labs back and on portal show 3 months on Merck protocol and every metabolic and chem, lipids, thyroid, all are normal. Liver is almost normal chem wise, function is back. Merck figured out Doctor Doom's mistakes, one of which is inspiring this share, which is necessary.
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For at least five years now, I have gone from grade 0 to grade 3 type C Hepatic Encephalopathy, a very serious neurological condition mistaken usually for behavioral issues. Merck found it. It's reversing with no medications beyond the protocol. My doctor blamed trauma despite
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brain bleeds, seizures, visual issues and the worst of it was personality changes, rage, emotional and impulse control problems and a very fast moving decline in cognition. I thought I was just a horrid human angry at everyone and was weak-ass needy unable to cope. I feel shame.
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This was way too close a call. I'm so glad you're getting your life and your self back. I've been dismissed by doctors as a depressed hysterical female and it sucked, but didn't put my life at risk.
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I'm sorry you've experienced that at all it shouldn't happen. The Hippocratic Oath is not first Do no harm that is the Latin version that came later. It is if you cannot help a patient's you do not do anything that will worsen their condition. The oath is optional not required.
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Fortunately, the doc with the insulting dx referred me to a female psychiatrist, who was able to conclude after 15 minutes that I didn't have primary depression. Over the years I've been able to find medication that mitigated my ME symptoms considerably, if never completely.
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You're diagnosed with myalgic encephalomyelitis? They told me I had CFS which was the u.s. equivalent and you're probably just depressed. I really hope that you got tested for all kinds of parasitic, fungal and viral diseases, brain injury or problems with bleeding. Thyroid Etc.
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The American psychiatrist dx'ed CFS, which I'd suspected, but no few people on CFS-L (my main source of everything) were from England, where I moved in 1994, and I met all the criteria for ME, which was discovered a heck of a lot earlier than "Yuppie Flu."
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LOL I remember the term Yuppie flu how insulting. Fact every single patient in my c f s support group from the 80s are all dead but me and their friends or spouses. Cancer, blood disease, infectious hepatitis such as b c and d as well as other infections and like me rare disease.
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At least in my case they actually ran tests for possible infections and other issues. The problem was, they hadn't run those tests before I got sick, so had no idea what my individual baseline was. "Within normal range" doesn't mean much if it isn't *your* normal.
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Replying to @salliegoetsch
Exactly this is why I always say us medicine is just charts checklist clipboards and morality judgment. Honestly how can one ever use a scale of 1 to 10 to describe pain? I've joked before I always answer it goes to 11. Some people get the joke. Most do not.

Feb 10, 2022 · 5:13 AM UTC

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Replying to @mholzschlag
I was terrified to move back to the US on account of leaving the NHS. It had plenty of faults, but no more than far more expensive American care does.
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