Thank you dear friends for your thoughts and love鉂わ笍 My surgeon whom I'd never met walked into the room and said I don't understand you. I burst out laughing and he said I'm not sure this is a laughing matter. I reassured him that it was since most people never understand me馃槀...
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I said could you be more specific and he said that he had never seen a profile like mine blood-wise and had no idea what he was looking at except that my platelets were so low that there was no way any surgeon would touch me outside of a full service hospital. He asked if I knew
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How low my blood counts were and that he himself had never seen a human being alive with the white and platelet counts that I have not to mention looking so normal in general. He wondered why my PCP even referred me to him and he had no documentation of my 8 years in oncology...
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I explained I was treated by Dr Rachel Swertres Arizona oncology for bone narrow a pleasure and wanted to prevent further bleeds from the gut. he gave me a physical exam, set me up with an MRI and other tests for Monday and referred me to Del Sol research management for follow-up
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Del Sol research management is a very high-end research group that does clinical trials funded by big pharma. I won't be going into a trial however they are interested in my case and have a PhD on staff who is doing research with new targeted nutrition for liver regeneration...
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His name is Dr Andoloro and I will hear from him today or tomorrow. On Tuesday I see the research management head doctor who will Review the tests and my documentation and determine whether I need to be hospitalized for surgeries. Concerning the dire prognosis the good news is...
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That information is only accurate alcoholic liver disease which mine is not and He added that the fact I had not been drinking since 2013 was also a very life extending choice and I should be proud of myself, while I am still decompensating if they slow disease in the GI track...
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And I continued to be very careful to avoid injury and infection the blood disease cannot be improved but I would do best to put my fears aside and follow their guidance I could find significant extension of life. Continuing awesome support from you all is the best medicine 鉂わ笍
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The research group website can be found at DelSolResearch.com. because it's a research facility I don't pay. My studies will be funded by Merck. First time in my life I'm happy about intervention from US capitalist medicine 馃槣

Sep 9, 2021 路 7:49 PM UTC

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Replying to @mholzschlag
YESSSS! My sister was in a similar position for a dif health issue (research project & hers was a case study) Her $$$$$$$$ of treatment ended up being all free & topnotch. I think it saved her life, too... and they figured out that conventional treatment was WRONG.
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So glad your sister hadsuch quality care! I wish that for all. I agree with the "wrongness" of aggressive treatments that can bankrupt families much less physically harm and kill for-profit. I rejoice when folks thrive! All good thoughts to you and your sister. 鉂わ笍
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Replying to @mholzschlag
Good to hear your still confounding the medical professionals. Long may you do so. Hugs
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Replying to @mholzschlag
About time that industry spent money on you instead of the other way around.
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Replying to @mholzschlag
The chemo was super harsh but she has been stable for years, and hopefully, will continue to be so. Honestly, she is doing so well that I sometimes forget how sick she was. Hoping that you have that outcome as well. :-D
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Replying to @mholzschlag
Fingers crossed! This sounds really good. Take care!
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Replying to @mholzschlag
Wonderful news, my love. And while your case IS complicated, I'm so happy for their attention AND THE FUNDING!馃檹馃徑馃檶馃徑
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Replying to @mholzschlag
This all sounds really positive, Molly - I鈥檓 so happy for you. Sending hugs and love from the other side of the Pond. x
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Replying to @mholzschlag
Great news on the funding! Thanks for keeping us up to date Mols. May things continue to go in a positive direction for you!
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Replying to @mholzschlag
This is wonderful, wonderful news. 鉂わ笍
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