While the 'second opinion' advice would normally make sense, it's driving me insanely nuts. For folks who didn't know me until recently, I understand. But for folks who know at least some of the medical history, that's noe even remotely a reasonable piece of advice.

I have been medically ill since I was 4 years old with bleeding problems. Each decade brought more diseases, abuse and stufff that my peers for the most part here would find horrifying. I was deemed 100% disabled at 21. .

I got out of bed at 28 or so and pushed through bleeding, pain, fatigue and many other symptoms until 2013 when I collapseed in LAX. I was in full bone marrow failure. Once treated enough to send me to UMC in Tucson, tests finally revealed my "hidden disability"

- my bone marrow, liver, spleen, gall bladder, GI system were all failing. They treated me (different story for a difffent day) and I was expected to die in 2014. I did. For two minutes. I came back.

I was in chemotherapeutic hematology until April of this year, when the FDA stopped the treatments I was on - no one had to their knowledge survived that long, no data as to the danger. My liver is a disaster. My bone marrow barely making blood.

My spleen is enlarged, not working properly and sequestering most blood the remaining marrow makes. not working properly and sequestering most blood the remaining marrow makes. This rolls no over to the liver, where coag factors (abd bone marrow is made in neonatal development).

The liver became fibrotic then cirrhotic (non-alcoholic FYI) from the massive awful going on. Not long ago I began having gastric bleeds, vomiting blood every few months. In late March they used a Fibroscan to look at the liver. It is not staged yet but appears to be 3.