As myy trip down medicine lane for mismanaged and misdiagnosed lifelong conditions it's about damn time. Enough with extreme amplifiction of pharmaceuticals and over-medicating to which I wobbly stand as a reminder iatrogenic disease is no fucking joke. aeon.co/ideas/how-gentle-med…
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It took from 1996 when I first started showing Parkinson’s symptoms until July 5, 2013 to diagnosed me with Parkinson’s. Prior to that I was misdiagnosed six times. My first experience was with my PCP who said my tremor was just nerves and not to worry about it.
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Replying to @tannyo
ARGGGGH. I bled from 1967 to 2013. Nose, gums, heavy menses. Only one CBC was abnormal - a hemmorhagic ovarian cyst. Resolved. Tested every 3 months, PCP never informed me of low platelets or white cells til 2012 "we'll watch". Bone marrow fail. Oncologist freaked, went to work.

Jul 28, 2020 · 8:47 PM UTC

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Replying to @mholzschlag
Wow! I’m glad you found an oncologist that is helping you.
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I came back in part for her. M.D. and Ph.D. Knows what no one did. Wish I'd found her decades sooner. This shit sucks more than illness for me. SO degrading and cruel.