As myy trip down medicine lane for mismanaged and misdiagnosed lifelong conditions it's about damn time. Enough with extreme amplifiction of pharmaceuticals and over-medicating to which I wobbly stand as a reminder iatrogenic disease is no fucking joke. aeon.co/ideas/how-gentle-med…
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It took from 1996 when I first started showing Parkinson’s symptoms until July 5, 2013 to diagnosed me with Parkinson’s. Prior to that I was misdiagnosed six times. My first experience was with my PCP who said my tremor was just nerves and not to worry about it.
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You and I are Veterans of a terrible and different kind of warfare. I've had to take Klonipin for tremors and absence seizures and it is the ONLY pharmaceutical I take regularly for any reason. I have ridiculously high tolerance for sedative medications, but most do not. :(
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I am the opposite of you in that I have a low tolerance for medication. Taking drugs makes me anxious.
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It appears to be genetic in origin, but green eyed red/Auburn haired women especially have frustrated anasthesiologists for a very long time. 7 surgeries, woke up every time. Once quipped 'sure this isn't the morgue?' - Surgical suites are freezing!!! :D anesthesiaexperts.com/uncate…
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I have green eyes. One time in the hospital to remove cancer from my right ear I woke up halfway through the operation. The doctor was yelling at the lab because they hadn’t sent results in over an hour. I asked if something was wrong. He said be still and they gassed me again
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Typical and cold :/ The fascinating part is you were cogent, as was I. I am also a multiphasic sleeper. 2-4 hours. Any more than 6 and I am likely very sick. People are different but checklist, charts, clipboards aren't. Healthcare is not science. "My pain is a 7" is meaningless.
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I need more sleep than you. Finally get four hours I am not a nice person and I don’t think straight. I hate it when doctors or nurses asked me what’s your pain level 1 through 10? I don’t know (in a frustrated voice), it hurts enough that I am screaming in pain how about that?
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Or when the pain level is lower. I don’t know (in frustrated voice) I groan when I move or it just hurts. I really liked the one when I went in with a head injury. I had passed out & was bleeding. If it wasn’t hurting much I would’ve come to the ER. What’s wrong with you people!
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Don’t get me started when they don’t listen to you. With the last doctor I had and sometimes with others it feels like marriage counseling. Now what I believe I heard you say is… Is that correct? Sigh…
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Replying to @tannyo
Again, 98% since mid 20s of all medical professionals from docs to EMTs who do not understand basic medical terms despite the rarity of my condition and related from falls, seizures, like you - or start person-splaining, I leave. If they don't respect I won't let them treat me.

Jul 28, 2020 · 8:06 PM UTC

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