Splenic sequestration is usually associated with Sickle Cell Anemia. I have Bone Marrow Aplasia. It's sequestering platelets not red cells. My reds came all the way back with Epo. Whites are low. Normal platelets start at 150k. I hover around 30-40k. Transfusions do not last.
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There is an orphan drug now allowed outside of the chemo/immunotherapies called Promacta. We'll see. Most patients like me didn't get the stimulants EPO and Neupogen. My age, that's 6 years life extension. Swart's got me at 7+ years now. I had you. Love, support through awful.
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Despite the extreme rarity of my condition, (> 2 people per million) I'm in prestigious and fascinating company. Madame Curie died of it (due to radium poisoning) as did Eleanor Roosevelt (who succumbed to infection due to no white cells, specifically TB). This is why I isolate.

May 7, 2020 · 1:34 AM UTC
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