Please read and understand.
Gregory Mansfield @GHMansfield
7 Sep 2019
Doctor:”What’s the appropriate term? Wheelchair bound? Confined to a wheelchair?” Me:”Wheelchair user.” Wheelchair bound and confined to a wheelchair are restrictive terms. They are not synonymous with wheelchair use. They are synonymous with ableism.
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Unless they live it it's unlikely they will understand this very important distinction. I have had the opposite problem - I always look better than I feel and am very animated so they think I'm making it up until the blood tests come back. I hope the doctor got their comeuppance!
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I hear you. Still, I think modeling anti-ableism as as best as one can helps shape - in whatever small increments - how others see things.
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and anti blame-the-patient awareness. It is not my fault when another person doesn't have the capacity to understand complex science. The lack of education and awareness from providers is not addressed and managed in my experience.
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Yeah. When you don't fit into the cookie cutter, it starts to feel like game over. You certainly shouldn't inconvenience them by having more than one issue.
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Replying to @accessamy
I once had a complex care social worker who was horrible to me. I asked her why she went into advocacy if she wasn't interested in being an advocate. She hung up on me, a person with history of self-harm/suicidal ideation. Many choose avoidance for our own safety. Idiocracy!

Sep 8, 2019 · 2:42 AM UTC

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Replying to @mholzschlag
Arrrrrrrrrggggggghhhhhhhhhhh!
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The sun just went down here. If we howl together the whole animal kingdom will join in! Sadly, they aren't equipped to deliver the message. But the howling is very therapeutic indeed lol