It is the true teacher who leaves the class knowing they have learned the most.
Tucson, AZ
Joined September 2006
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The only place I can find to help requires 5,000 to $10,000 out of pocket no insurance allowed. Or illegally or I suffer through and risk dying I am really not sure what to do at this point. @UHC is trying no success. Shame on health "care" shame on big Pharma Shame Shame Shame.
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So here I am alive 9 years past terminal diagnosis got off of every prescription but the benzo on my own. This one I've taken from 5 mg of clonazepam down to 1 mg per day. But how do I do that on my own if I can't access the prescription in the first place to taper slowly.
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I was in so much pain and so sick from other drugs as well I was on EPO the Lance Armstrong drug, many other support medications and now enter the opiate era. I got the hell off of those and exchanged it for a medical marijuana card and it worked. Got off of everything but benzo.
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There had also been intermittent use of chlorpromazine for severe nausea which is a first gen anti-psychotic. This caused the already existing neutropenia to become so severe I was down to almost 500 increasing neupogen, bone marrow stem cell stimulant. Very painful side effects.
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I also showed non-alcoholic cirrhosis of the liver decompensated with no other symptoms then heavy scarring from Nash. I was given chemotherapy and immunotherapy including interferon which cause psychiatric symptoms. Now I had a subclinical mood disorder. Prescribed Quetiapine.
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So by now not only did I have what was called CFS for lack of a better way to describe my medical issues along with panic disorder severe anxiety and major depressive disorder with dysthymia along with photosensitive epilepsy and absence seizures. In 2013 my bone marrow failed.
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I became actively suicidal and began acts of self harm. So what did they do raised my dosage to 40 mg from 20 I was in my thirties already and for one day had SSRI induced psychosis with disorientation disassociation and bizarre thoughts I was immediately dropped to 20 mg.
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I was told this was the miracle cure for women with severe PMS. It was Fluoxetine of course package just for women like me. Within hours a strange feeling came over me within 6 months I was bleeding almost 30 days a month and no relief from depression at all in fact the opposite.
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Several years into medical illness I experienced a major depressive episode I had self-reported those feelings of depression no suicidal ideation no self harm those feelings began 10 days prior to menstruation when it started within minutes no symptoms. I was prescribed Sarafem.
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So instead of believing me she now wants me on gabapentin, hydroxyzine, and an SSRI all of which I've taken at some point in my life and will not do I am down to one prescription, the benzo. I'm a long- term Survivor of terminal illness who might actually die of benzo withdrawals
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Tell me about it. I'm looking for safe tapering for 38 years of benzos. I was not anxious. doctors could not diagnose my medical illness which revealed itself later to be bone marrow aplasia. Doctor insists anxiety panic and seizures now are symptoms returning not withdrawals
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Another day another revelation of the horrors of Pharmaceuticals used by psychiatrists. Benzo withdrawal is the most dangerous of all with potential seizures that can lead to death. After withdrawal there can be long-term or permanent damage. Mother's Little Helper my ass.
New benzodiazepines and pregnancy warnings:
A @US_FDA review found withdrawal symptoms in newborns, infants with low muscle tone, sedation, and respiratory symptoms exposed to benzodiazepines late in pregnancy or during labor. New warnings will be issued. benzoinfo.com/2022/08/04/fda…
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I don't think we're farther away from the sexist nonsense at all my dear. I wish it were true fortunately there was a minimum amount of that in my own experience but where it happened it wasn't pleasant and I know it's been rampant elsewhere and look at our countries attitude now
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Thanks I looked on your resource list and there is nothing that is useful to me in Arizona. United Healthcare can't find anyone most psychiatrists or even clinics will not do a benzo withdrawal if they did not prescribe it they're too afraid of the consequences nice huh
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Thank you. My husband was a Navy corpsman who was in combat doing field surgery with an exposure to Agent Orange so severe it took 51 years as paralysis moved up to his body and left him paraplegic. Governments want war send the elders not the children.
va.gov/resources/the-pact-ac…
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Trump-backed candidates in the Arizona primaries are not doing as well as one might have expected considering this idiotic state results are not all in of course and there's still the real election to contend with but maybe there is hope after all?
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The one person I could find in my City is going way too fast two seizures, panic as well as very bizarre thoughts she claims it's my symptoms returning. I never had these symptoms in the first place. I need somebody to help me properly or I'm going to end up what do I do?
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Also not adored at all and not admired LOL it's fine with me because I was that kid who didn't want to hear oh that's very nice little girl I wanted to be oh that sucks or that is tremendous and kind feedback that would be constructive to growth. Thank you for being my friend.
This is not an inconvenience it's antithetical to the principles of the open, interoperable, user Choice driven worldwide web you are destroying the foundational principles of a beautiful technology given freely to the world for the betterment of humanity not the ownership of it.
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