It is the true teacher who leaves the class knowing they have learned the most.
Tucson, AZ
Joined September 2006
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- Following 13,801
- Followers 26,057
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Hey @karlstolley love that smilin' face! For all interested in #AccessU in Austin in May knowbility.org/education/acc… WONDERFUL opportunity #a11y nitter.vloup.ch/karlstolley/stat…
Historical: #aplasticanemia has claimed the lives of two influential women Marie Curie (from radium) and Eleanor Roosevelt (TB) #raredisease
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Who is going to #accessU in May? If I'm able and stable, I am going to try to come. NEED to see you #a11y tribe and beloved @knowbility fam!
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If you want to donate blood on my behalf (still enters global distribution so it goes to save many lives) can specifically donate Platelets.
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Sweet friends offering blood! if you're able and willing to donate blood in your country please do. It's a globally distributed network FTW!
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You are all miracles. It's all a miracle. And a curse. Whatever. It is. A punching bag gets punched. So it has always been.
This is what reaching "Maximal Medical Benefit" means. #stupidSemantics right? More meaningful? "last ditch effort before the last ditch." 😂 nitter.vloup.ch/detonite/status/…
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I may need to chatter a lot. Please don't let it upset you. It helps me. Unfollow if too upsetting or unpleasant. I understand, BELIEVE ME 👿
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Platelet xfusions and neupogen. Healthcare Nevada is very good. Please don't get ill in AZif you cannot afford... swarmapp.com/c/4l48ADDLM7u
I wished I believed in god, or heaven. That my Ray will be waiting. That we will dance the ocean with our silly kitty and be forever free.❤️
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Thanks World Wide Web. For not advocating open standards and accessibility. She was a true love. You abused her, hastening her demise. #a11y
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Do I say farewell?
Do I hang on?
Do I submit?
Do I pretend it's not real?
Do I accept it?
Do I allow death?
Yes.
But please not before Mom.
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But I think I may have to face facts.
My illness is not survivable.
Stress has pushed platelets (bad) and white cells (very bad) too far.
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Will not going through the hell of a Bone Marrow Stem Cell transplant with a mortality risk that is almost certain. I'll gamble with nature.
Doctor: Do you have siblings?
Me: FUCK
Brother set to do a donor match since Dec. The odds of survival for me are ~2% with stem cell xplant.
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That sucked. Two hours on phone for Ray's V.A., accounts, survivor benefits all the while looking his face on military ID breaking me down.
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Maybe my #aplasticanemia is just a doctor's way of saying: "You're a Vampire, Mols!"
1. Needs blood
2. Sprouts wings
3. Stays up all night
🦇
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