It is the true teacher who leaves the class knowing they have learned the most.
Tucson, AZ
Joined September 2006
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You're wrong. We don't make enough of all blood cell types. Please stop spreading bullshit. Pancytopenia is not Anemia. Thx.
This is an "authority" org discussing #aplasticanemia - wrongly. Proof of idiocy everywhere. We stop making ALL 3 blood cells #PANCYTOPENIA.
DYK: #aplasticanemia occurs when the body stops making enough red blood cells buff.ly/2mALVg0
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So if you know anyone living with #aplasticanemia or ARE one? Get in touch if you're able. We could use a support group. Truly! #raredisease
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Super idea: "Have you tried a support group?" And statistical probabilities show there may be 8 people on earth living WITH #aplasticanemia🤣
if they had treated me 30 years ago, I'd be having cocktails right now ;-) No. There is nothing to be done other than complain.
Fucked up: Comparison shopping for an attorney
More Fucked up: in LAS VEGAS
There is so much work for them in Sin City we bus them in.
But you'd think so, right? This is why I am sometimes in a very nasty mood. I'd say I'm sorry, but my own body is a horror show 24/7.
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For them to do exactly what? And who pays if anything could be done, which it can't. There is nothing medical that can stop this for me.
Been doing more long-form free writing than I have in years. Rehab myself up to formal and books again? Or, A Ph.D. perhaps? Dr. Molz is IN!
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Etiquette check: Saying "Life is Terminal" to a mortal with deadly illness is not comparable. We all die. A mortal illness steals life away.
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Sweet reasonable advice. This medical problem is over 30 years. I've had 100s of opinions. 1 turned out right. #raredisease #orphandrugs
Get a 2nd or a 3rd opinion if necessary. You sound like you need a plan to suit you, not them. Be Strong. 1D@ATime
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That's what OPEN is meant to be about. Or, if not that way for others it means that for me. Open heart AND source.
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They can't STOP me from anything :) This is a medical decision that the Federal government recognizes but not a legal mandate.
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