It is the true teacher who leaves the class knowing they have learned the most.
Tucson, AZ
Joined September 2006
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@JS_Zao Hopefully, your Mom got a diagnosis and was able to do okay. Rough road either way, my heart goes out to you. Tough on families.
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@JS_Zao You do have appreciation. MS is another illness, along with Lupus, that can go for decades undiagnosed or misdiagnosed.
@matbeeDOTcom I'll be okay. As long as you can use a real live kitty cat as fashionable headwear, life is very much livable.
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@CharJTF and I imagine metabolic/chem bloodwork along with renal panels to ensure health elsewhere (liver, pancreas, etc.)
@JS_Zao actually, it doesn't. All those Secondaries really should be "Secondary to" and there's a missing part: secondary to chemo x 2. Ha!
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@starweaver One issue with medical marijuana for me: I can't get a high enough CBD/CBN extract so inflammatory pain, headaches go unchecked.
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@starweaver That's so great to hear. And yes, it is frustrating when you're a legal #mmj patient and can't get or have meds when traveling.
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@CharJTF I'm surprised they allow aspirin in your case. I can't touch anything NSAID, hepatotoxic (APAP). Valium? By the truckload!
I will obey the Good Doctor Kaplan (If their names don't start with Good I don't go to them), go to bed and take my pain medication. #zonk
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It's like winning a prize you never wanted. You thought you wanted it. You dreamed of it, prayed for it, really aimed for it and got it.
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Illness owned me. I began to question my own sanity. There was no empiric data. Who was right? Which reality? MINE! Maybe now I can move on.
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Most of you never knew how sick I really was. You never saw the pain until I began overmedicating it (and by then, depression) with alcohol.
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Of course I'm mad at the U.S. Medical Industrial Complex. Of course I tweet to death about it. It's dominated my life in many terrible ways.
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Was it really better for medicine to blame me instead of treating me like the intelligent young woman I was and simply say "we don't know?"
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@adrienneleigh Oh yes, the idiopathic part, so much fun. It means "We're idiots because we can't say WE DON'T KNOW."
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My inner teenager is saying "COOOL dude, I get Medical Marijuana for life!" while my outer adult is saying "Shaddup and take your Oxy." #FCK
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So the problem now is that medical treatment for Arthritis, which has made great strides (ha), all of it - is prohibited in my case.
They couldn't quantify the Chronic Autoimmune Inflammatory Arthritis part until they were sure that it wasn't just a post-chemo side effect.
When I was 22, I prayed day and night to a god I believed in to have the overwhelming illness diagnosed. Now I have it, and I don't want it.