It is the true teacher who leaves the class knowing they have learned the most.
Tucson, AZ
Joined September 2006
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@misterfluff I asked. I asked. I asked. Now I'm screaming. How is THAT good.
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Does anyone here define what I'm going through as being "good" - because if you do, then I need to rethink . . . everything. Let me know.
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It is @misterfluff? I need help then. My day to day life is GOOD? I'm bedridden. I struggle to eat, to turn over in bed, to breathe. GOOD?
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@AZDHS Thank you so much! Greatly appreciated. A++ for responsiveness and interaction here on social networks. Very helpful indeed!
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Can someone take over my life for an hour while I go and have 60 minutes without physical pain, emotional misery, system disrespect & abuse?
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Today's gonna be FUN! Talking with the IRS and Disability Welfare programs. I'm excited to engage with such perfect examples of system FAIL.
Kid brother Linus is getting married in November. Here's a #throwbackthursday #tbt in his honor. With our mom, 1969.
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@TucsonFirePIO Hi there! Told to check with y'all about medical sharps waste disposal. The program I was on lost funding. Any suggestions?
@thyraxx I agree. And I also write poems and get mad and rant along with love. I am not just one thing. None of us are. Let it be. Bad day.
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@thyraxx Maybe when I'm not filled with these medications. They make me sick. Going into two years of bedridden chemotherapy now. Cheer up?
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@Tucson_Police Thanks for the info on expired prescription drop off! I lost prior services for medical sharps disposal. Who takes them now?
Depleted of dignity, energy, blood, nutrients, hydration it's now time for me to go do my chemo. And the hits just keep coming. Cool, huh?
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@raena Of course we are. But that's the language you need to use to make anyone listen to you. It's all about the money. / @ArizonaOncology
System engineers observe a dominant pattern: All systems at some point fail. Each failure must be addressed or said system won't survive.
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@tahdhaze They answer to no one so that's why I'm publicly shaming. It's up to me/us/advocates. Read the NYT? Story recently on exactly this
Passivity is not my strong suit. Ironically, I've just been too weak the last year to do any self advocating much less helping others.
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@mikecane Let 'em. I will bring a posse of activists and friends and gladly be arrested publicly if it brings attention to the real disease.