It is the true teacher who leaves the class knowing they have learned the most.
Tucson, AZ
Joined September 2006
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You do help me @mosaik. We help each other. That's the world I choose to be in. Kindness is PARAMOUNT to my survival.
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@seyitaylor By the way your header photo is hilarious. I might have said that before.
@seyitaylor It's not in the least practical, but if I continue to deteriorate like this I'm going to become a Medical Tourist. :D
@briankardell I'm joking. Mostly. No need to be sorry.
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@mosaik It's been the most awful year of my life. Not because of my struggles alone. There's so much loss and suffering and I feel helpless.
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@hope__armstrong I'm glad we got to do that. That's the last time I did anything useful! :D
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@shanselman Pics of my friends' children playing free of pain and sorrow gives Crazy Auntie Mols joy and comfort. This isn't a hint at all.
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That's the sad cost of capitalism, kids. Money really does come before people. What a tragic nation of greedy fools we are. I'm sorry.
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Been doing my research: US pays more for pharmaceuticals due to multi-pay systems. Single-pay systems (national health care) get one price.
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India gets the new treatment protocol I need at 99% discount compared to US. Why? Because they can. Anyone in India want a roomie for 6 mos?
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Any folks involved in building patient portal systems? Oh the horrors. Help me help you advocate for interop before it gets any worse.
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So through a series of fuck ups not mine, the paperwork for insurance approval didn't go out til' last week, 3 mos late @mattrobin140s
There is an economic issue. The new med costs 180,000.00 USD and the other will be 30,000.00 or so for six months treatment, @mattrobin140s
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At some point I may need to organize a posse and bombard the insurance co's and drug manufacturer. Can I badge you now @obiwankimberly?
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Meh, I'm just frustrated. As soon as I start on the new protocol my chances at full recovery are so good I really shouldn't complain.
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@e_to_the_m LOL! Truth is so refreshing these days. Thanks ;-)
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@jeremiahfelt OptumRX. It's a specialty service. This isn't anything they carry at Walgreens. I'm waiting for approvals for the treatment.
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