It is the true teacher who leaves the class knowing they have learned the most.
Tucson, AZ
Joined September 2006
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I now have a new diagnosis "Medically induced blood disorder." Which is gonna cost a lot to treat - I'm starting to feel conspiracy vibes.
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Bloodwork: WBC 1.2 / RBC 2.72 / Hemoglobin 9.2 / Hematocrit 28 / Platelets 17,000. All dropping. I'll be in a plastic bubble soon.
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That didn't last long. Back on Procrit and I feel like crap. Every joint, bone and muscle is screaming at my head, which is screaming back.
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Was reading about that @jalbertbowdenii. India especially produces quality generic at shockingly lower cost. World Health Org is advocating.
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I can get in on a trial or compassion program that covers the cost. I'm glad Criminal Minds is on tonight. Something to lighten the mood ;)
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And now for the punchline: Cost of new med? 1,000.00 a pill. $180,000.00 for the full treatment. People, don't get sick with rare illnesses.
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That's what I get for holding out on all this #tucson sunshine and warmth. Here, have some! I'm sorry I was a selfish, mean child!
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I know intellectually *I* didn't fail, but much misery just to hear "Stop, you're done. Right now." It's difficult and really scary. [3]
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Now six more weeks of bed rest and if blood is better a new six month protocol with a brand new drug that's just been cleared by the FDA [2]
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Even on Procrit and Neupogen my bloodwork continues to worsen. Treatment is stopped as of today to see if I can make blood on my own. [1]
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I have a confession. It was ME who changed the global thermostat. So yes, I 'bumped' the switch. It's 76F here and sunny. AND I'M NOT SORRY!
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I've no blood so they TAKE MORE? These labs are freaking docs out! 27k platelets, 2.66 RBC with abnormal cells, 1.0 WBC. #IAmTheWalkingDead
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HBO's True Detective FTW. Matthew McConaughey is doing some of the best work of his life and Woody Harrelson is deliciously understated.
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Opera founder von Tetzchner: It's all gone to crap since I quit reg.cx/29D5 via @theregister
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Someone at @LabCorp where I get my bloodwork done MUST change that outgoing message. Guy says "LabCorpse" - it's only funny a few times!
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@jillyrocket @Piratenpartij Amgen is the company. The 9,000 USD is for my particular treatment - cost and drug can vary between patients.
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It's patents @markboulton - so long as the pharma co's have 'em, they can do pretty much what they want. Dear Amgen, I'll take my meds free!
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@wesoudshoorn When SyFy pays me to do endorsements, I'll endorse ;)
Good you didn't write out Amgen @markboulton. $9,000.00 USD p/month for the insured. Unavailable to the uninsured. Free to famous athletes.
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